I was tied up when my father died.
Not figuratively, literally tied up.
I've only mentioned it once to someone, even then I don't think I got it all off my chest.
I should elaborate.
My father had been in declining health for years, he was home most of the time, just drained. He had slowly dulled, and at the time none of us really noticed the slight changes. It was a slight decline at first, like how you don't notice that a floor slopes a certain way until you accidentally drop something round. Then, suddenly, he didn't just decline, he plummeted, if you want a specific date, it was August 30th, 2006. He had heart bypass surgery a few weeks before, and after his surgery he was glowing, his color and stature, everything. He appeared decades younger. Suddenly though, everything drained out of him, and on August 30th, his birthday, we brought him to the emergency room. He was admitted, and a few days later he was in ICU. At first he was telling us he would be out in a few days, saying that was more for him, he hated hospitals. A few days and then his words were slurred, his eyes were slightly glazed, his hand would twitch, he would see things, things you knew were vivid to him, he was in it. A few more days and he didn't know who I was. He couldn't form words, only noises. His whole body twitched. And he would look at me with the most blank empty stare. He was so far from the father I worshiped, his skin was pale with a hint of gray, his shoulders slumped, his eyes were empty, glazed over and dull.
I couldn't look at him without doubling over, weeping.
It got to the point where the doctors said he would be lucky to make it through the night. My mother was barely holding it together. My sister had completely withdrawn. I was drained, exhausted. That night they found the infection on his sternum. It had festered to the point where the infection seeped into his bone, by this point his liver and kidneys were failing, they air-lifted him to another nearby hospital the next state over.
His recuperation was long, he spent months in the hospital, it was a miracle he was alive, but he'd never be the same. His kidneys were shot, he was resigned to dialysis three times a week. He lost circulation in his right foot, his toes and part of his foot were removed.
August 30th would be the last time my father ever walked.
Eventually he would come home, and we tried to find some sort of normality. He would still go upstairs, sitting and lifting himself up to the next stair, we kept wheelchairs upstairs and downstairs for him. My father, who used to spend his time tinkering with computer software for major corporations, was now on a solid schedule of doctor's appointments, dialysis, and sitting around the house. His depression was evident, he felt useless.
Over time, he would spend about a week per month in the hospital with another infections. His limbs were slowly taken away until he had no legs, and one hand that only had a thumb. He was in constant and excruciating pain. In his last year of life, he couldn't do anything for himself, he couldn't feed himself, bathe himself, he needed help going to the bathroom, my sister would brush his teeth for him, he spent almost all of his time in bed.
I wish I could say I was there, helping my mother and sister care for my dad. I wish I could say that I was able to step up, but I wasn't. I was there when I could, but I still cried when I saw him. I rarely visited him in the hospital, I had nightmares where I found him, giving me that empty blank stare again.
A few days before his 56th birthday, my father was in his room, and my mom heard him talking to someone. He was talking to his father, my grandfather, who had passed away before I was born. My father asked him if he would be going to heaven, my father asked if everything would be alright without him there. My father wept while my mother held him, he was scared, terrified by what he had just seen.
That night he told my sister and I about what he had seen, he couldn't say more than a few words without crying again. My mother had to tell most of the story.
August 30th, 2010, my father decided that he would no longer go to dialysis, he refused any treatment, he stopped taking his medications. He decided it was time.
A few days without dialysis and your body builds up toxins that would normally be flushed away. A few more days without dialysis, and you stop thinking clearly. Your words slur, your body twitches, your tongue swells, you lose your connection with reality.
At least, that's what happened to my father. He believed he still had legs, he would get angry, so angry, when he tried to get out of bed, and you stopped him. He would yell, and those would be the only words you could understand. Some of the last things he ever said to me were out of anger, horrible things. What hurt more was that he had no idea he was saying them, or why.
I was hardly in a good place. I needed a release, I needed some way to refocus myself on something else, to get out of my own head for a while.
I had been talking to someone locally about trying a rope scene. I had never been bound before.
We met on Sunday, September 5th for coffee. We talked, we discussed, we negotiated.
He wanted to get together soon, I wanted to make sure everything was alright at home. I said I'd call if I got some free time, I had already been away from my parents' house for a little bit more than an hour and was nervous. I kept checking my phone for missed calls all through coffee.
When I got back, my mom was awake, sitting on the couch, crying. My dad was in bed, yelling, screaming her name, he was angry, no one knew what he wanted. This was pretty much normal.
A few hours later he was asleep, my uncle was there, and my sister was home to help my mother, she said I could leave and get away for a few hours. I guess it was pretty obvious that I was cracking.
I left and called my coffee date. I asked him if we could meet, I wanted to be bound.
I went home, got some things, and met him in a parking lot a few miles from his house. I left my car, and rode with him, he didn't have enough parking space for me to drive myself. He lived with two other guys, they were all in college. His room screamed college bachelor, minus the posters of almost naked women advertising beer. He gave me a quick orientation, getting his ropes and showing me the material, explaining what he'd be doing, asking me questions, answering my questions, and then he tied me up.
About two hours later, my phone rang. He untied me and I answered, it was my sister.
She told me to come home, quickly. I asked if dad was alright, she said "Just come home."
I got dressed, gathered my things, and we left. He drove painfully slow, although I'm sure he was speeding. I wanted to get out and run back to my car, I felt like that would be faster.
After I got to my car, I raced to my parents' house. Halfway there I got a text message, from my cousin, saying if I needed anything, to call her. I messaged back asking what had happened, no response.
It's really a wonder I didn't get pulled over, or crash. I was checking Facebook, trying to see if there were any answers. I saw a message another cousin had posted, saying RIP.
I drove faster.
I flew into the driveway, spraying gravel as I braked. I didn't even close my car door, I just got out and ran. Inside, I saw my uncle sitting, typing up an email, then, in my dad's room, I saw my mom. She was sitting in a chair, holding my dad's hand, crying. Then I saw my dad.
You read things about how people look when they die. How the skin loses color and turns a lifeless gray, how, if you stare long enough, you can almost see them move. It's all true.
I couldn't stop apologizing, leaning over my father and weeping, saying over and over again how sorry I was that I wasn't there.
I've never been more ashamed.
Everyone was in a fog, I think. At least I was. The priest was called, the prayers were said, the funeral home director came and with an assistant took my father's body out, draped in a flag, and drove him away.
The next few days were simply going through the motions. Everyone said the same thing to me, they were sorry for my loss, I responded the same way to everyone. We miss him, he's in a better place, his pain is over, thank you for coming, thank you for calling, thank you for thinking of us.
I tend to tackle most problems head-on. I reason with it, I understand it, I make a decision and then I'm done with it. This was so much bigger, I put it away. I tied up my feelings and buried them as deeply as I could manage.
About a week after his funeral, I went to Summer Camp. The sun shone, everyone was friendly and open, my head was clear. I'm not sure if running off to sex camp is considered appropriate mourning, but I needed it. I had forgotten how to smile, how to laugh, and Summer Camp gave that back to me. It was the escape that reminded me how to experience joy.
I haven't touched rope since. I tried a rope workshop at camp, and even though I was calm and knew there was nothing to be afraid of, my palms were sweaty. I couldn't help but feel my phone in my pocket, focused on it, waiting for it to buzz, waiting for a phone call. I know it's all psychological, some day I'll try it again, but right now I have this obstacle.
I still mourn the loss of my father, I'll always miss him. There are so many conversations we never had, so many things we'll never do, so many things he'll never see. There are some days I forget he's dead, and then I'll remember. There are some times where I could swear it's been years since he passed, there are some times where I could swear it's been hours. It's been a little more than four months.
This is a story I've wanted to tell for a while. Believe it or not, this is the condensed version, I could spend days relating every little detail. I'm no longer ashamed, I'm sad. I wish I had been there, and I'm sad that I wasn't, but I would still like to ask something of anyone who reads this.
What I ask is that you take something from this story. Don't settle on something as simple as 'life is short'. We all know life is short. We all know that we want more time. Let this roll around in your mind, let it build mass until a though, and idea, a feeling is tangible to you. I don't ask that it be profound, I ask that it be true to your own story. Then, I ask that you remember it.
Why do I ask this?
It's hard to explain, but simply put, I want my father's reach to be far. I want him to be in the minds of more than his family. I want his story to be told, I want something good to come from it.
So, take a few moments to think and absorb.
My father died from complications due to uncontrolled diabetes. He could have lived decades longer had he managed his diet and life. As a daughter who watched her father crumble, whither, then die, and as a sister who watched her younger sibling grow up with only memories of her sick, dying father, I can say that all of this was preventable. What I take from this, is that we owe it to ourselves, and to our loved ones, to take care of ourselves.
That sometimes, you have to change to survive and thrive.
Until next time...